Investigation of Stigma and Self-Confidence in Adolescents with Epilepsy


DOI:
https://doi.org/10.5281/zenodo.14994111Keywords:
Adolescent, Epilepsy, Felt Stigma, Self-ConfidenceAbstract
Objective: The aim of the study is to investigate the relationship between percieved stigma and self-confidence of adolescents with epilepsy.
Methods: The research is a descriptive study conducted with 60 adolescents with epilepsy and 60 healthy adolescents aged 10-19 years who applied to Mardin Training and Research Hospital in Mardin between September 2022 and March 2023. The data were collected by applying a face-to-face survey method through a personal information form measuring the sociodemographic characteristics of the participants, the Self-Confidence Scale (SCS) and the Child Perceptions Scale (CPS). Permission to participate was obtained from the participants and their parents with a consent form. Data analysis was performed using SPSS Statistics 26 program.
Results: The mean score of epileptic adolescents on the Self-Confidence Scale was 3.36±0.8, while the mean score of healthy adolescents was 3.81±0.71; the relationship between these scores was found to be statistically significant (p<0.05). The mean score of adolescents with epilepsy on the Child Perception Scale was found to be 2.84±1.1.
Conclusion: The level of self-confidence of epileptic adolescents was lower than that of healthy adolescents, and the level of stigma of adolescents with epilepsy was found to be moderate. It is recommended to aim to reduce discrimination by raising awareness of epilepsy in the society and to take initiatives to increase the self-confidence of epileptic adolescents.
References
Akın, A. (2007). Öz-Güven Ölçeği'nin geliştirilmesi ve psikometrik özellikleri. Abant İzzet Baysal Üniversitesi Eğitim Fakültesi Dergisi, 7(2), 167-176.
Austin, J. K., MacLeod, J., Dunn, D. W., Shen, J., & Perkins, S. M. (2004). Measuring stigma in children with epilepsy and their parents: Instrument development and testing. Epilepsy & Behavior, 5(4), 472-482. https://doi.org/10.1016/j.yebeh.2004.04.008
Baker, G. A., Brooks, J., Buck, D., & Jacoby, A. (2000). The stigma of epilepsy: A European perspective. Epilepsia, 41(1), 98-104. https://doi.org/10.1111/j.1528-1157.2000.tb01512.x
Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioral change. Psychological Review, 84(2), 191–215. https://doi.org/10.1037/0033-295X.84.2.191
Benson, A., O’Toole, S., Lambert, V., Gallagher, P., Shahwan, A., & Austin, J. K. (2016). The stigma experiences and perceptions of families living with epilepsy: Implications for epilepsy-related communication within and external to the family unit. Patient Education and Counseling, 99(9), 1473-1481. https://doi.org/10.1016/j.pec.2016.06.009
Bilgin, O. (2011). Ergenlerde özgüven düzeyinin bazı değişkenler açısından incelenmesi. [Yayımlanmamış yüksek lisans tezi]. Sakarya Üniversitesi.
Bucaktepe, G. E. (2016). Adölesan bireye yaklaşım. In Y. K. Haspolat & F. Aktar (Eds.), Adolesan Sağlığı ve Hastalıkları (s. 13-30). Kadim yayınları.
Chew, J., Carpenter, J., & Haase, A. M. (2019). Living with epilepsy in adolescence—A qualitative study of young people's experiences in Singapore: Peer socialization, autonomy, and self‐esteem. Child: Care, Health and Development, 45(2), 241-250. https://doi.org/10.1111/cch.12648
Corrigan, P. W., Edwards, A., Green, A., Diwan, S., & Penn, D. (2001). Prejudice, social distance, and familiarity with mental illness. Schizophrenia Bulletin, 27(2), 219-225. https://doi.org/10.1093/oxfordjournals.schbul.a006868
Çengel-Kültür, S. E., Ulay, H. T., & Erdag, G. (2009). Ways of coping with epilepsy and related factors in adolescence. The Turkish Journal of Pediatrics, 51(3), 238.
Çoknaz, H., Yıldız, M., Erbil, E., & Altıntaş, H. (2018). Lise öğrencilerinin öz güven düzeylerinin karşılaştırılması. İstanbul Üniversitesi Spor Bilimleri Dergisi, 8(1), 37-48.
Demirel, U., & Okcin, F. (2020). Epilepsy and stigma/Epilepsi ve stigma. Journal of Education and Research in Nursing, 17(4), 378-383. https://doi.org/10.5222/HEAD.2020.94220
DiIorio, C., Shafer, P. O., Letz, R., Henry, T., Schomer, D. L., & Yeager, K., Project EASE Study Group. (2003). The association of stigma with self-management and perceptions of health care among adults with epilepsy. Epilepsy & Behavior, 4(3), 259-267. https://doi.org/10.1016/S1525-5050(03)00103-3
Dima, S. A., & Shibeshi, M. S. (2022). Antiepileptic drug adherence in children in southern Ethiopia: A cross sectional study. Plos One, 17(2), e0263821. https://doi.org/10.1371/journal.pone.0263821
Doğan, Ş. A., & Yılmaz, E. A. (2017). Epilepsi tanısı alan adölesanların sağlıklı yaşam biçimi davranışları ve etkileyen faktörler. Cumhuriyet Hemşirelik Dergisi, 6(2), 83-90.
Faul, F., Erdfelder, E., Buchner, A., & Lang, A. G. (2009). Statistical power analyses using G* Power 3.1: Tests for correlation and regression analyses. Behavior Research Methods, 41(4), 1149-1160. https://doi.org/10.3758/BRM.41.4.1149
Feltz, D. L. (1988). Self-confidence and sports performance. Exercise And Sport Sciences Reviews, 16, 423–457.
Goffman, E. (2014). Damga: Örselenmiş Kimliğin İdare Edilişi Üzerine Notlar (Çev: Geniş, Ş., Ünsaldı, L., Ağırnaslı, S.N.). 1.Baskı. Heretik Yayıncılık. (Orijinal yayın yılı: 1963).
Hills, M.D., Baker, P.G. (1992). Relationships among epilepsy, social stigma, self-esteem, and social support. Journal of Epilepsy Research, 5(4):231-238. https://doi.org/10.1016/S0896-6974(05)80122-7.
Jacob, L., Hamer, H. M., & Kostev, K. (2017). Adherence to antiepileptic drugs in children and adolescents: A retrospective study in primary care settings in Germany. Epilepsy & Behavior, 75, 36-41. https://doi.org/10.1016/j.yebeh.2017.07.001
Jacoby, A., Ring, A., Whitehead, M., Marson, A., & Baker, G. A. (2014). Exploring loss and replacement of loss for understanding the impacts of epilepsy onset: A qualitative investigation. Epilepsy & Behavior, 33, 59-68. https://doi.org/10.1016/j.yebeh.2014.02.015
Johnson, E., Atkinson, P., Muggeridge, A., Cross, J. H., & Reilly, C. (2021). Inclusion and participation of children with epilepsy in schools: Views of young people, school staff and parents. Seizure, 93, 34-43. https://doi.org/10.1016/j.seizure.2021.10.007
Karademir, N. (2015). Fen edebiyat fakültesi coğrafya bölümü öğrencilerinin özgüven algıları. Kahramanmaraş Sütçü İmam Üniversitesi Sosyal Bilimler Dergisi, 12(1), 53-77.
Köse, S., & Çelebioğlu, A. (2018). Validity and reliability of Turkish version of the scales of perceived stigma for children with epilepsy and their parents. International Journal of Nursing Sciences, 5(3), 238-242. https://doi.org/10.1016/j.ijnss.2018.07.004
Kutlu, A., Gökçe, G., Büyükburgaz, U., Selekler, M., Komşuoğlu, S. (2013). Self-esteem, social phobia and depression status in patients with epilepsy. Archives of Neuropsychiatry, 50(4): 320-324. doi: 10.4274/Npa.y6374.
Lee, H. J., Choi, E. K., Park, H. B., & Yang, S. H. (2020). Risk and protective factors related to stigma among people with epilepsy: An integrative review. Epilepsy & Behavior, 104, 106908. https://doi.org/10.1016/j.yebeh.2020.106908
MacLeod, J. S., & Austin, J. K. (2003). Stigma in the lives of adolescents with epilepsy: A review of the literature. Epilepsy & Behavior, 4(2), 112-117. https://doi.org/10.1016/S1525-5050(03)00007-6
Meier, L. L., Orth, U., Denissen, J. J., & Kühnel, A. (2011). Age differences in instability, contingency, and level of self-esteem across the life span. Journal of Research in Personality, 45(6), 604-612. https://doi.org/10.1016/j.jrp.2011.08.008
Nagabushana, D., Praveen-Kumar, S., & Agadi, J. B. (2019). Impact of epilepsy and antiepileptic drugs on health and quality of life in Indian children. Epilepsy & Behavior, 93, 43-48. https://doi.org/10.1016/j.yebeh.2019.01.021
Onwuakagba, I. U., Okoye, E. C., Obi, G. C., Okoye, E. A., Akosile, C. O., & Akobundu, U. N. (2020). Community integration, self-esteem, and perceived stigma in a Nigerian sample with epilepsy. Epilepsy & Behavior, 112, 107392. https://doi.org/10.1016/j.yebeh.2020.107392
Orth, U., Trzesniewski, K. H., & Robins, R. W. (2010). Self-esteem development from young adulthood to old age: A cohort-sequential longitudinal study. Journal of Personality and Social Psychology, 98(4), 645. https://doi.org/10.1037/a0018769
Ozanne, A., Graneheim, U. H., Ekstedt, G., & Malmgren, K. (2016). Patients' expectations and experiences of epilepsy surgery—A population‐based long‐term qualitative study. Epilepsia, 57(4), 605-611. https://doi.org/10.1111/epi.13333
Özcan, M., & Fırat, M. (2020). Ergenlerde olumsuz değerlendirilme korkusunun özgüven üzerine etkisinin incelenmesi. Van Sağlık Bilimleri Dergisi, 13(3), 1-9.
Riechmann, J., Willems, L. M., Boor, R., Kieslich, M., Knake, S., Langner, C., ... & Strzelczyk, A. (2019). Quality of life and correlating factors in children, adolescents with epilepsy, and their caregivers: A cross-sectional multicenter study from Germany. Seizure, 69, 92-98. https://doi.org/10.1016/j.seizure.2019.03.016
Serin, Y. (2019). Epilepsi hastalarında algılanan damgalama ve benlik saygısı ilişkisi. [Yayımlanmamış yüksek lisans tezi]. Düzce Üniversitesi.
Smith, A. W., Mara, C., Ollier, S., Combs, A., & Modi, A. C. (2018). Rebellious behaviors in adolescents with epilepsy. Journal of Pediatric Psychology, 43(1), 52-60. https://doi.org/10.1093/jpepsy/jsx089
Şengül, Y., & Kurudirek, F. (2022). Perceived stigma and self-esteem for children with epilepsy. Epilepsy Research, 186, 107017. https://doi.org/10.1016/j.eplepsyres.2022.107017
Thomson, L., Fayed, N., Sedarous, F., & Ronen, G. M. (2014). Life quality and health in adolescents and emerging adults with epilepsy during the years of transition: A scoping review. Developmental Medicine & Child Neurology, 56(5), 421-433. https://doi.org/10.1111/dmcn.12335
Turan, G. B., Özer, Z., & Özden, B. (2022). The effects of perceived stigma on the concealment of disease and satisfaction with life in patients with epilepsy: An example in eastern Turkey. International Journal of Clinical Practice, vol. 2022. https://doi.org/10.1155/2022/1064999
World Health Organization (WHO). (2023). Epilepsy. Erişim tarihi: 20.11.2023, https://www.who.int/news-room/fact-sheets/detail/epilepsy.
Yamanouchi, S., Sasaki, M., Tachikawa, K., & Kaneko, S. (2018). Psychological status of young women with epilepsy: Significance for nursing care of patients with epilepsy. Epilepsy & Seizure, 10(1), 52-67. https://doi.org/10.3805/eands.10.52
Zamani, G., Shiva, S., Mohammadi, M., Gharaie, J. M., & Rezaei, N. (2014). A survey of quality of life in adolescents with epilepsy in Iran. Epilepsy & Behavior, 33, 69-72. https://doi.org/10.1016/j.yebeh.2014.02.012
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2025 GEVHER NESIBE JOURNAL OF MEDICAL AND HEALTH SCIENCES

This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.